Quality of Life of Mothers Having Children with Chronic Renal Failure

Abstract

Background

  During the last several decades, significant improvements had been achieved in management of children suffering from end stage chronic kidney disease (ESCKD), with advancements in dialysis care whether in predialysis period or dialysis technology which lead to prolong long-term survival of affected children. But these medical achievements saddle families (especially mothers) of ESCKD children with significant psychosocial, social, environmental and physical burdens.

Aims of study

To assess the overall Health Related QoL among mothers of ESCKD children in Child Protection Teaching Hospital in Baghdad. To find out the association of socio-demographic and socio-economic variables with physical, psychological, social and environmental domains of QoL.

 Methods:

  A descriptive cross sectional study was conducted on a sample of 108 mothers of less than 16 years old children diagnosed with ESCKD attending hemodialysis unite in Child Protection Teaching Hospital in Baghdad during the 1^st half of 2019.Mothers` health-related quality of life was assessed using World Health Organization – Health Related QoL BREF questionnaire.  Chi-square test was used to find out significance of associations between related variables where P. value ˂0.05was considered statistically significant.

Results

  Social relationships Health Related QoL is the most impaired domain in studied mothers (43.8/100), while the least affected domain is the physical health (52.2/100).

Conclusion:

physical health quality of life of Mothers who were caring for children with ESRD on hemodialysis was affected but to lesser extent than other QoL  domains, while  social relationships  was the most affected domain followed by psychological wellbeing  then environmental domains.